Question: How long do people with harlequin ichthyosis live for?

The prognosis is very poor. Most affected babies do not survive beyond the first week of life. It has been reported that the survival rate varies from 10 months to 25 years with supportive treatment depending on the severity of the condition(8).

Can you die from harlequin ichthyosis?

In the past, babies diagnosed with harlequin ichthyosis, the most severe form, rarely survived the first few days of life. However, with recent advances in neonatal care and the advancement of medical care, harlequin infants do survive and lead fulfilling lives.

Does ichthyosis affect life expectancy?

People with mild ichthyosis have a normal lifespan. However, the most severe inherited types can be life threatening. If you have inherited ichthyosis, youll have it for life. Acquired ichthyosis may get better if the underlying cause is identified and treated.

What is a harlequin baby?

Harlequin ichthyosis is a rare genetic skin disorder. The newborn infant is covered with plates of thick skin that crack and split apart. The thick plates can pull at and distort facial features and can restrict breathing and eating.

What is Harlequin baby syndrome?

Harlequin ichthyosis is a rare genetic skin disorder. The newborn infant is covered with plates of thick skin that crack and split apart. The thick plates can pull at and distort facial features and can restrict breathing and eating.

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